For those who haven't heard yet, yesterday morning we had Charlotte rushed to the hospital in an ambulance after calling 911 and determining she may be having seizures. She had no apparent convulsions, jerking or flailing, but she definitely wasn't acting like her normal self and gradually started to stare at the wall and just drool until EMS arrived. On the ambulance ride she did have convulsions so the paramedics gave her a sedative to calm them. At the hospital she appeared to have minor convulsions and she was given additional sedation. She then had a CT scan, MRI, Lumbar Poke.
All the tests came back normal, but Charlotte was disoriented most of the time, confused, scared, angry, and desperate to get out of there. She ended up staying overnight in the ICS, and this morning she had an EEG test. Most of the day yesterday she was incoherent, slurred speech, but thankfully today everything seems "normal" again. Her doctors believe the chemo she’s been on to suppress the cancer may have caused her to have a negative reaction, so they're looking into a different chemo to use now. We're still awaiting final approval from the neurologist (based on the EEG results) about whether or not they will release her from the hospital today. She's currently doing some painting crafts in her room, full of energy, and happy - in total contrast to what she was yesterday.
Praying that the EEG results come back with normal results and that we are able to return to a somewhat normal life again. Thank you for your support and prayers. I was so scared yesterday for my sweet little girl and I’m so thankful she is back to her normal sweet self. My stomach is still in knots from all the stress and anxiety, but it's nothing compared to what Charlotte had to endure. This little girl is a fighter and God must have His angels watching over her. God bless. Thank you for your continued prayers, thoughts, love and support.
-Sean
From ALYICA:
Charlotte asked a few staff members if she'd be home for Thanksgiving, and they said that they can't imagine keeping her that long. No other seizures since yesterday. Still waiting for the EEG and the doctors to come by and talk with us. Neurology said they'd be in later, but I haven't seen them yet. The EEG is going to be a portable unit they bring here to her room. Originally, neuro wanted her to go downstairs, but they like to keep the immunocompromised kids up here. It's supposed to be here in 20 minutes. I finally see the doctors outside the door.
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