Today began normally. I got up, went to work, then Sean called and told me that Charlotte was acting weird. She didn't seem to be able to talk and was making spit bubbles. I don't know if yelled is the best word, but it's the only one I can think that fits... I yelled at him not to call me, to call the hospital. By the time I shut down my PC, clocked out, gathered my gear, and hit the parking lot. I thought to call our neighbor, Eve, who is a nurse at Primary's. Thankfully, she was home and immediately agreed to go over to our house.
Before I reached home, Sean had talked to the clinic and Eve. He was told to call 911. There apparently was a police car, an ambulance, and a firetruck. Sean called as I was getting off the highway, and told me they were headed to Primary's in an ambulance.
I reached Primary's before the ambulance. So I filled out the paperwork and they led me back to her room a few minutes later. The Charlotte we know and love was not home. Her arm was twitching and her eyes were not focused on anything. The ER staff gave her another dose of anti-seizure meds, and I could see short glimpses of Charlotte coming aware, and then losing awareness. She tried to get up and struggled into my lap, where she fell asleep. When her oncologist came in an hour later, she started to become belligerent. She couldn't make sense, her tongue wouldn't form words correctly and she found it very frustrating. She kept trying to leave the room. We could understand enough to hear her say she wanted to go play, and she needed to go to school. Finally, she settled down and fell asleep in my lap.
They took a CT, didn't see anything, so they ordered an MRI and another spinal tap, thinking it might be an infection in her spinal fluid. Sean stayed with Charlotte for the MRI, and I ran home to pack a bag and get Naomi situated. Charlotte will be staying the night here. When I returned, the doctors and Sean told me that her MRI looks good, and her spinal fluid showed no infection. The theory behind the seizures is that Charlotte is experiencing "Chemo toxicity" A redundant term if I ever heard one. They will do an EEG tomorrow, to watch her brain activity, and we will know more then. She is talking and walking almost normal now, and she is full of energy. I'm trying to convince her that now is bedtime. Sean is home with Naomi tonight. I hope we will join them tomorrow. If not, I won't fuss.
1 comment:
ohhhh Alycia that is sooo scary. I'm sooo glad you guys are close to Primarys because they are amazing. We will have Charlotte in our prayers, hope you guys can get some answers!!
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