Home Tonight...

Tired but home tonight. Charlotte shows no outward negative signs of her seizure. The EEG did show "different activity" in her left posterior of her brain. The neurology guys said it could be leftover from what happened yesterday, or it could be she is pre-disposed to have seizures, which isn't to say she would definitely ever have one again... or she could. So we were given the choice, start medication now for seizures, not knowing if what they were seeing was something leftover from yesterday or whatever. The medication does reduce occurrence of seizures, but doesn't guarantee she won't have one. And if we do put her on medication, since they aren't sure what they were seeing, they would want to wean her off it again in 6 months and see how it goes. Or we could just watch and wait. If it happens again, we will begin seizure meds knowing that we are needing to. They said both options have merit. Oncology said she could be the 10% that have this reaction to methotrexate. We now have an appointment to see them again on Monday. Charlotte will have another lumbar puncture then in the OR. Given choices, Sean and I decided to watch Charlotte. We have emergency meds to administer if she does have another seizure that lasts beyond 5 minutes... then we call 911 again. I feel good, but this was scary. These neurologists assured us there are many kids and adults who have seizures, and are able to manage them. They are scary to witness, but the larger percentage patients who experience seizures live without negative results. The plan is to prepare for the worst happening again, and go forward like it won't. We aren't going to be hovering over Charlotte's bedside the entire night, watching her sleep.