Tuesday, March 12, 2013

Half-way through Interim Maintenance II


Charly and I went to chemo early Monday morning.  Since she was going to have a lumbar puncture, which means she cannot eat until they are done, I scheduled it to be the first appointment of the morning.  Combined with the Daylight Savings time change, the 8am appointment was a little early.  We still got there on time, bright-eyed and bushy-tailed.

Charly's oncologist asked for her to walk down the hallway for him without her boots on, so he could see if the Vincristin had affected her feet.  Some kids experience a side effect from the chemo that makes them walk funny.  Charlotte did NOT want to walk out of the patient operatory down the hallway.  We cajoled, begged, and offered to hold her hand, or to model walk with her.  The input nurse that weighs Charlotte even joined in.  Charlotte backed herself against the sink and refused to leave.  "I'll walk in here" she offered, but the room is barely 12 feet long, nowhere near long enough for the doctor to evaluate her gait. Finally, a nurse very familiar with Charlotte's love of crafts, suggested she walk to see if there was  a new craft packet at the front table.  Charlotte informed her she already checked the table, and had taken the last packet.  The nurse suggested there might have been more put out and that Charlotte should go see.  Charlotte walked to the table, saw there were NO PACKETS, and stomped back to the operatory.  She wrapped her arms around me and began to cry silently.  Which led the odd combination of feeling like the meanest person ever and wanting to laugh at the same time.  The oncologist declared her walk perfect and gave her a pat on the back.  I could tell me felt the same way - wanting to laugh and feeling like a trickster.

Charlotte quickly rebounded when I suggested she share a joke with the medical crew  - What do you have when two cats fight?  A CATastrophe.  

We gathered our stuff up and crossed the hall for the LP.  After the lumbar puncture, Charlotte received some crackers and cheese slices while she received another increased dose of methotrexate and vincristine.

Her counts were excellent (which is why they increased her chemo again).  Mom mentioned that Heather and Elisa were thinking to take their kids to the zoo on Friday if the weather was good.  She asked me if Charly could go too.  Sean said he thought she was supposed to stay away from animals.  I told him the only notice I received was to beware the swine flu at the Utah State Park.  I double-checked with Charly's oncologist, and he said "take her to the zoo and have fun!"  On the way home, I knew I had to go get some stuff at Costco.  I mentioned to Charly that I'd drop her home before I went. "Oh PLEASE TAKE ME WITH YOU!"  I figured if the zoo was okay, then I could take her to Costco at 11:30 on a Monday morning. - of course, neurotic cancer mom reared her head and told Charlotte - no food samples and don't touch anything and touch your mouth or face after.  When we get home, you have to promise to wash your hands right when we walk in!  (Let's face it, cancer warps you.  Don't get me started on the new thoughts about how germ infested the sacrament trays probably are.  I try not to dwell on it too much, because it would make you afraid to leave the house.)  Charlotte enjoyed the 30-minute Costco run beyond reason, and declared the day to be THE BEST DAY EVER!  I admit, having my littlest helper with me again made it feel like it was the best day ever too.

We are on the last 3 treatments before Maintenance.  If all goes according to schedule, that means she's on Maintenance in another 30 days.  She will still get monthly chemo through her IV with quarterly lumbar punctures, and it will be almost another 18 months before they take the central line out of her, but when she rebounds from this round of chemo, we'll start taking her to church again, she can start back in school, maybe in time for all the fun stuff at the end of her first grade year, definitely for the start of 2nd grade.  I confirmed she is good for swimming lessons this summer.  I'm ready to get things moving back to as normal as we can manage.  We will definitely be seeing the ER again whenever she catches a bug, but if it is like our visit the Friday before last, I can manage that.  

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