"Peg" shot

Today was Charly's "Peg" shot. Sean took her up to the oncology clinic at Primary Children's. Her appointment was at noon. It took 2 hours for the medicine to arrive, an hour to deliver the medicine via Charlotte's port, and they wished to observe Charly for an hour before they would let her go home. When I got home at 3, they were still not home. Primary Children's has lousy cell phone reception. All the nurses/doctors travel around with these weird Vocera devices that allow them to communicate with one another while in the hospital. There are only a few areas that you can get reception, and the oncology clinic is NOT one of those places.

I've been debating that I may have developed a sinus infection - I'm lucky to usually get one after I start getting sniffily. I decided to call my GP, and he squeezed me in for an appointment at 4:15. I had 30 minutes to whip together a lasagna, and took off to the doctor's office. The doctor came into the room, and asked how I was doing. He's aware of what's going on with Charlotte, and this is the first time I've seen him since she's been diagnosed. He asks if I'm eating healthy, exercising, etc. I told him exercising has been put by the wayside lately. With this stupid cold, I've slept in the last 2 Saturday mornings, and Charly's home school is usually in the afternoon, when I used to try to squeeze in time on my elliptical. It's been 2 weeks since I found time to work out. He looked at me and told me to find something I could watch while I was on the elliptical and to make sure I exercised. He wrote me a script for an antibiotic, and I was on my way. On the way home, I kept calling Naomi to ask her to turn on the oven and put the lasagna in. She was playing in the snow with friends. Sean called me at 4:45 to tell me they were finally on the way home. I stopped to drop off my Rx and to get french bread to go with dinner. By the time I get home, Sean's already been there 10 minutes, and Naomi never ran home to turn on the oven and put in dinner. Charlotte apparently hadn't eaten lunch before going to the clinic and was starving. I cut off a slice of bread for Charlotte and made the rest of the loaf into garlic bread. By the time dinner was ready... Charlotte wouldn't eat. Dang it. Charly's next appointment is this Thursday at 2pm. I told Sean that I would try to leave work early and take her.
Charlotte's cold has her coughing a lot, especially in the early morning. So far, no fever. While my colds usually end up as sinus infections, Charly's have always seemed to linger in her chest.